youngsters.haei.orgHAEi Youngsters

– the next generation of HAE advocates of the world Facebook Instagram LEAP LEAP 2024 Keep up with the class – timeline LEAP welcome + program About the LEAP Program Building the Program Social Media Internship NEW! Resources & Tools Resources What is HAE? The Hangout Blog Academy and Trivia Magazines Newsletters Community Postcards Tools Going abroad Being in a Relationsship Posters for #GC20 For Kids Activity Books Children’s books Nico’s book series The Rare Boy and the Talkative Little Balloon Motivando Vidas – Motivating Lives Coloring Pages Infographic about HAEGuidelines Meet the Team World map: You are not alone #TogetherApart Contact us JOIN US! Search for: home page Rikke Sørensen 2024-03-08T14:40:18+00:00 Join us! ? New excting Social Media Internship lot of cool opportunities! ? ? Sign up for our newsletter or read our previous ones ? ? Read the Youngsters’ blog it’s not boring, pinky-promise! ? ? LEARN Experience Advocate Pave the way ? Join the community today sometimes we have cookies! ? HAEi YOUNGSTERS CONNECTED BY HAE. UNITED AS A FAMILY! ??❤️??? Welcome to the ’ Community Whether you are newly diagnosed, starting school, university, moving abroad, or starting a new job, this is the place for you. On this website, you can find resources and tools that can help you learn more about HAE. Whether you want to build awareness about HAE in your community, become an HAE advocate, or simply need a way to explain what HAE is at school – we have you covered! Our goal is to learn, stay connected, grow our global community, share our experiences and have fun together! Join us and together we can make memories to last us a lifetime! The Youngsters Advisory Group WHY WE VALUE THE HAEi YOUNGSTERS’ COMMUNITY LEARN MORE Anastasiia, 23, Russia: It’s essential to have people who can understand everything you’re going through Rachel, 19, Brazil: This community makes us feel like we are belonging to a group that accept us, love us, help us the way we are Michaela, 22, US: as a young adult with a rare illness, it’s easy to feel alone or lost. The Youngsters’ community gives me hope and faith to keep pushing forward. I definitely would not be where I am today without this community! Dejan, 18, Macedonia: I am part of this wonderful family that cares and shares beautiful things with all of us. Elizabeth, 22, US: It helps us all connect and share our stories. Victoria, 20, Denmark: It’s like a family where you can be 100% yourself, be supported and understood even if you are a patient or a caregiver. It’s a very strong community of amazing passionate young people from all around the world advocating for HAE. Facundo, 22, Argentina: It lets us know that we are not alone. Provides support to young people around the world who understand what we live. Anna, 21, Brazil: We support, share experiences and care for each other in a world where few people understand what is it like to deal with HAE. The community makes us realize that we are not alone. Ava, 14, US: The ’ Community is important because it gives an opportunity to get to know other people that are living through the same situation that you are. It’s a great way to meet other people that you have something in common with, and is a constant reminder that you aren’t alone. HAEi YOUNGSTERS YOU ARE NOT ALONE JOIN US! is a part of HAE International (HAEi) – a global non-profit network of patient associations dedicated to raising awareness of hereditary angioedema (HAE) around the world and improving the lives of people with HAE. 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